Off Topic Post, but Important
By user9157252 on Oct 29, 2008
[ Olivia and Carolyn waiting to meet Michelle Obama ]
This is off-topic for my blog. Wildly so. I almost never post anything so personal here. But it's important to me, and important in general, so I think it needs to be said.
I know this amazing person. I've known her for almost 30 years. We went to high school together, and that was a long time ago. She is, and always has been, one of the more outstanding, upstanding people I've ever known (and not insignificantly because she still even speaks to me after all these years).
Yesterday she sent an email to her family and friends after getting to visit with Michelle Obama. I am honored to have been included in the distribution of that message, and she has graciously consented to let me post it:
Words can't express how much fun this event was. I have more pictures posted on facebook (thanks, David!) for those of you that want to have more peeks.
Carolyn was "speaking out" for herself and her fellow special needs friends. We wanted to make it clear that we don't need Sarah Palin as an advocate for Special Needs. She's an insult to the intelligence and well-being of the HUGE umbrella of special needs syndromes. The current administration has caused us to lose top researchers, lose hope, and lose lives. It's a crime and, just as W, McCain is not going to advance stem cell research, he's only supporting the existing lines of stem cell funding.
It's too late for Carolyn to benefit from advancements, but not too late for many of her friends. Many of you are blessed with healthy children...please don't let one day go by without being grateful. Current lines are excellent for the AIDS, Cancer, Parkinson's, Alzheimer's....but for "orphan diseases" we are at the mercy of advancement.
I could never have said it that well. And I believe that she is entirely correct. Any belief that McCain/Palin would give 1/100th the attention and dedication to our Special Kids is laughable. They don't understand what that means, and are incapable of doing it.
Her daughter, Carolyn, has Mucopolysaccharidoses, which is a mouthful to say. Visit the MPS Society Website to find out more about it, and consider making a donation to support their research.
[ Micro Credo: Never trust a computer bigger than you can lift. ]